First Update

Hannah is nearly six months old and weighs just over 15 pounds. She looks great and is a typical bouncing, wiggling baby. She is pink and chubby and looks the picture of health. It is hard to believe when you look at her that she has such a serious disease. Thank God for the fantastic people at Birmingham Children's Hospital Liver Unit. It is hard not to be obsessive about her health, particularly as all the good work could be undone by a few bouts of cholangitis (infection of the bile ducts in the liver caused by bacteria from the intestine - a common complication of the kasai and one that causes liver damage very quickly). However we try to take a day at a time and enjoy this time when she is in such good health.