The letter came this morning and it is booked for 22nd August. I somehow didn't expect it to be quite so SOON. Crap.
I've been doing some homework and thinking a lot since my post weighing it up. More soon.
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Hannah was born with a rare liver disease called biliary atresia. At six weeks old, she underwent a corrective surgery called a Kasai operation, which has been a very successful therapy for her. She is our 'sunshine girl', always full of smiles and enthusiasm for life. The Kasai operation is not a cure, and Hannah still faces complications of liver disease and possibly a transplant in the future. This is a place to chronicle Hannah's journey with her liver disease.
Hannah's Journey
About Hannah
Hannah is three years old and is coping very well with her liver disease. She has an enlarged liver and spleen, which means she has portal hypertension, and she also suffers from itching, but none of that stops her growing well and having lots of energy. Hannah's liver is currently working as well as we could hope and it could be many years before she needs a transplant.
You can read more details of Hannah's journey by going through the Blog Archive. For an in-depth account of the first six months of Hannah's life, click here. (note: still in progress)
You can read more details of Hannah's journey by going through the Blog Archive. For an in-depth account of the first six months of Hannah's life, click here. (note: still in progress)
Liver Disease Support
Liver Disease Friends
- Abby (USA)
- Alan (USA)
- Amanda (Katie's Aunt) (USA)
- Analiese (USA)
- Angus (USA)
- Anna (USA)
- Anthony (USA)
- Arthur (UK)
- Bethany (UK)
- Caden (USA)
- Daniel (UK)
- Emma (USA)
- Ethan (UK)
- Grace and Meghan (USA)
- Helena (USA)
- Jack (USA)
- Jen and Jon (USA)
- Jordan (Australia)
- Liam (New Zealand)
- Lily (USA)
- Mario (USA)
- Marisa H (USA)
- Marisa M (USA)
- Melia (USA)
- Noah (USA)
- Rose (Australia)
- Sean (USA)
- Treyton (USA)
Biliary Atresia Information
Other Links
Blog Archive
- March 2008 (1)
- December 2007 (1)
- October 2007 (1)
- September 2007 (1)
- August 2007 (6)
- July 2007 (7)
- June 2007 (1)
- May 2007 (1)
- March 2007 (3)
- February 2007 (1)
- January 2007 (2)
- November 2006 (1)
- October 2006 (2)
- September 2006 (3)
- August 2006 (1)
- July 2006 (2)
- May 2006 (1)
- April 2006 (1)
- March 2006 (2)
- January 2006 (1)
- October 2005 (1)
- September 2005 (1)
- August 2005 (1)
- July 2005 (1)
- May 2005 (1)
- April 2005 (2)
- March 2005 (4)
- February 2005 (2)
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