The check up yesterday went very well. No massive spleen (it was never that likely)and bloods normal (Bilirubin 4, ALT 20, Alk Phos 274). We successfully negotiated the new hospital, including the bus. I was very impressed that we got a bleeper at the pharmacy for when the prescription was ready (he prescribed an antibiotic ointment for a sore she has developed on her chin), and that there was somewhere decent to get a snack and a coffee.
I have been holding my girl extra close today. One of our friends (and I do consider them friends) from Liver Families lost her baby boy last night. He has been very ill for several weeks and got too sick to be transplanted.
Having a child who is ill, and knowing people whose children are even more ill, or have died, makes you see your own children in a new light. You still get cross with them, but you also appreciate the little things in a way no one who hasn't been there could understand. I will be tucking Hannah up in bed at night, and I say a prayer of thanks that it is her own bed and not a hospital bed. Today I am just thankful that my children are here for me to hold.
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2 comments:
Glad everything went well.
I totally know what your saying here about apprecating our kids... I have baked, read and played with Daniel so much more this week it just makes you think....I'm with you sharon. Glad things went OK hun.
Liz & Daniel xx
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