Wednesday, March 01, 2006
Friday, January 13, 2006
New Year Update
Far too long since I updated, and Hannah is still doing great! Her clinic visit to the local hospital in November was a slightly mixed bag. We had the first ever completely normal bloods, which was very exciting, and Hannah was on 75th centile for weight and height! Unfortunately her liver was enlarged again, which it hadn't been in the summer (a bit mysterious, but I suppose may be down to how she is growing)but at least that gives some explanation for her big belly.
Shortly after that Hannah took part in a "Diploma of Child Health" exam at our local hospital, where the candidates were invited to examine her abdomen, given a few basic facts, and to name the likely diagnosis. She even got paid! I welcome this sort of opportunity, to help to educate others about paediatric liver disease.
Day to day, Hannah is doing very well indeed. Her development is bang on target, and she still has a very sunny personality, except when she doesn't get her own way! The only problem she has is with fairly mild itching, and I am wondering whether a change in meds may be necessary. She has almost completed a hectic vaccination schedule, the last one is the MMR on Jan 25th, and we also have to hope that her Hep B took, we shall find out about that when she has the MMR. So I am hoping we may have a 'non-medical' stretch following this until her next local appointment in May, and Birmingham in the summer.
Shortly after that Hannah took part in a "Diploma of Child Health" exam at our local hospital, where the candidates were invited to examine her abdomen, given a few basic facts, and to name the likely diagnosis. She even got paid! I welcome this sort of opportunity, to help to educate others about paediatric liver disease.
Day to day, Hannah is doing very well indeed. Her development is bang on target, and she still has a very sunny personality, except when she doesn't get her own way! The only problem she has is with fairly mild itching, and I am wondering whether a change in meds may be necessary. She has almost completed a hectic vaccination schedule, the last one is the MMR on Jan 25th, and we also have to hope that her Hep B took, we shall find out about that when she has the MMR. So I am hoping we may have a 'non-medical' stretch following this until her next local appointment in May, and Birmingham in the summer.
Wednesday, October 12, 2005
One Year Kasai Anniversary
Hannah is one year post Kasai, and gets to drop 5 medicines! Her vitamins ADEK and the prophylactic antibiotic. I feel a little nervous about the last one, although the use of prophylactic antibiotics in BA is not a proven science.
Hannah had her final Hep B vaccination on September 24th, and has a blood test to check for antibodies in January. She also has two flu jabs, pneumonia booster and MMR coming up in the next few months, and routine bloods in a couple of weeks. Hopefully after January she will have another break from being poked for a few months.
Hannah's next clinic visit is 4th November at the local hospital. We will get her blood results back then.
Hannah continues to do very well. She is now running around confidently and on September 20th we got her first shoes. She hasn't been weighed since 3rd August when she was 20lb 13.5 oz, but she certainly feels and looks like she is growing. She has a great appetite.
I still think her belly is big. I have always thought this and keep being told that it is normal (her liver and spleen have not been enlarged and she has not had ascites) but I keep looking at it and thinking it is not right. I think I measure it for a few days to hopefully put my mind at rest.
Hannah is still experiencing fluctuating itching. This is despite being on urso twice daily and antihistamine once daily. I can increase the antihistamine to twice a day, if this doesn't work we will have to look at something else. The itching seems to be more of a mild irritation to her over most of her body but she does still sometimes scab her ears, but not as badly as before. So the itching has become more generalised, and her ears are still the worst, but she is not damaging them so much.
The Kasai anniversary has mixed emotions for me as the memories of last year are not very pleasant, but I am so thrilled at how well Hannah is doing and has done in the past year. And please God may that continue.
Hannah had her final Hep B vaccination on September 24th, and has a blood test to check for antibodies in January. She also has two flu jabs, pneumonia booster and MMR coming up in the next few months, and routine bloods in a couple of weeks. Hopefully after January she will have another break from being poked for a few months.
Hannah's next clinic visit is 4th November at the local hospital. We will get her blood results back then.
Hannah continues to do very well. She is now running around confidently and on September 20th we got her first shoes. She hasn't been weighed since 3rd August when she was 20lb 13.5 oz, but she certainly feels and looks like she is growing. She has a great appetite.
I still think her belly is big. I have always thought this and keep being told that it is normal (her liver and spleen have not been enlarged and she has not had ascites) but I keep looking at it and thinking it is not right. I think I measure it for a few days to hopefully put my mind at rest.
Hannah is still experiencing fluctuating itching. This is despite being on urso twice daily and antihistamine once daily. I can increase the antihistamine to twice a day, if this doesn't work we will have to look at something else. The itching seems to be more of a mild irritation to her over most of her body but she does still sometimes scab her ears, but not as badly as before. So the itching has become more generalised, and her ears are still the worst, but she is not damaging them so much.
The Kasai anniversary has mixed emotions for me as the memories of last year are not very pleasant, but I am so thrilled at how well Hannah is doing and has done in the past year. And please God may that continue.
Tuesday, September 06, 2005
Hannah is walking!!! :-)
Two weeks ago Hannah first took a couple of shaky, unsupported steps. I can�t believe how fast she has some on since then. She is now walking from one side of the room to the other!! (Although the success rate is not 100%.) She holds her arms up in the air, bent at the elbow, which looks very cute!
Friday, August 26, 2005
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