One Year Kasai Anniversary

Hannah is one year post Kasai, and gets to drop 5 medicines! Her vitamins ADEK and the prophylactic antibiotic. I feel a little nervous about the last one, although the use of prophylactic antibiotics in BA is not a proven science.

Hannah had her final Hep B vaccination on September 24th, and has a blood test to check for antibodies in January. She also has two flu jabs, pneumonia booster and MMR coming up in the next few months, and routine bloods in a couple of weeks. Hopefully after January she will have another break from being poked for a few months.

Hannah's next clinic visit is 4th November at the local hospital. We will get her blood results back then.

Hannah continues to do very well. She is now running around confidently and on September 20th we got her first shoes. She hasn't been weighed since 3rd August when she was 20lb 13.5 oz, but she certainly feels and looks like she is growing. She has a great appetite.

I still think her belly is big. I have always thought this and keep being told that it is normal (her liver and spleen have not been enlarged and she has not had ascites) but I keep looking at it and thinking it is not right. I think I measure it for a few days to hopefully put my mind at rest.

Hannah is still experiencing fluctuating itching. This is despite being on urso twice daily and antihistamine once daily. I can increase the antihistamine to twice a day, if this doesn't work we will have to look at something else. The itching seems to be more of a mild irritation to her over most of her body but she does still sometimes scab her ears, but not as badly as before. So the itching has become more generalised, and her ears are still the worst, but she is not damaging them so much.

The Kasai anniversary has mixed emotions for me as the memories of last year are not very pleasant, but I am so thrilled at how well Hannah is doing and has done in the past year. And please God may that continue.